Isabel's Story

N/A is the main language of Isabel's Story facebook group. It is a CLOSED group. There are 263 participants in that group. So it is a Tiny group. You can find this group by searching 293908367484195 on Google, Bing or Yahoo. We last updated on 2015-03-27 22:59:43.

Nothing little about our Isabel
Isabel just turned 8. She may be little on the outside but she is certainly big on the inside. She is a typical child with not such a typical life.
Isabel is funny, imaginative, loving, cheerful and loves to play. Her favorite things are drawing, cooking, collecting bugs, singing, science experiments, ice/roller skating, swimming and riding her bike. She is drawn to people with other needs and has a way about her that lights up a person’s soul with her little voice and those dimples.
Isabel is the youngest of 5 kids. She is loved by 10 grandparents, many Aunts, Uncles and cousins. Our family is unique on all fronts in that we are a “mixed” family. We have a very supportive bond with those who are close to us and have a strong family foundation. Along with family, we have had great school and medical staff that have and continue to support both her and our family through the years which has made things easier.
Since her first days of birth we have battled with multiple chronic medical issues that have attributed to many appointments with different specialist, testing, hospital stays and ER visits, different medications, etc. Yet through it all Isabel has always maintained a high tolerance and is perceived to be a star patient. She is certainly one tough kid.
She is well adjusted overall, extremely happy and a loving child. She gets a lot of attention from others no matter where we are. Sometimes too much in my opinion……
As parents, we have watched and worried over these past years of what may or may not happen medically, socially and psychologically due to some of her medication side effects along with the unknown about her medical conditions and toileting.
Over the last 7 months we have gotten a lot of answers, some a blessing, some not so much. So we are now looking to move toward how to manage Isabel knowing some of her conditions are life long, some will pass and a few others may start. We have an amazing support system of clinicians at Children’s Hospital, her Primary Care and her School administration. We look forward to the future with all of whom work with Isabel and our family to make the best decisions and treatment options for her.
Isabel has Noonan Syndrome, Epilepsy, colon and bladder dysfunction,the list goes on. And although all manageable, this is nothing you want for any child or person to have to endure in their lifetime. Yet Isabel takes it in stride.
She is our strength, our support and our endurance to keep moving forward to help her. If it were not for her outlook we would crumble with all of her needs. She is truly an amazing little spirit whose story we are proud to share with you........... ..