English is the main language of Superior Canal Dehiscence Syndrome Support Group (SCDS) facebook group. It is a CLOSED group. There are 740 participants in that group. So it is a Small group. 221257197900489 is the identifier of this group with Facebook. 2015-01-08 12:41:11 is the closest date we have information about it.
This is a support group for those who have been diagnosed with this condition and have questions. From Johns Hopkins Hospital:
SYMPTOMS OF SUPERIOR CANAL DEHISCENCE SYNDROME
The symptoms of superior canal dehiscence syndrome can, but don’t always, include:
* loss of hearing, or enhanced hearing of noises transmitted through bone
* sense that the room is “jumping” at the sound of a loud noise
* vertigo, especially when straining or listening to loud noises
DIAGNOSIS OF SUPERIOR CANAL DEHISCENCE SYNDROME
Superior canal dehiscence syndrome can be a tricky condition for physicians to diagnose. For one, it’s a congenital condition that’s not terribly common. Secondly, a tear in the bone can be difficult to interpret, even with the use of a CT scan. In fact, the chance of misdiagnosing superior canal dehiscence syndrome can be as high as 30 percent.
While it’s imperative that patients undergo a CT scan to determine the presence of an opening in the bone, the diagnosis of superior canal dehiscence syndrome is not based exclusively on these imaging studies. The characteristic eye movements evoked by sound and pressure stimuli as well as findings on tests such as vestibular evoked myogenic potentials are an important part of establishing the diagnosis.
TREATMENT FOR SUPERIOR CANAL DEHISCENCE SYNDROME
The treatment we’ve developed for superior canal dehiscence syndrome has relieved patients of the uncomfortable symptoms. The surgery involves plugging or resurfacing the hole in the superior canal using a patch of bone from the inside of the skull. The bone is attached using a special glue. We use image-guided surgery to help ensure that we find and repair the dehiscence.
Patients remain in the hospital two to five days after surgery. They may experience post-operative dizziness, which will slowly subside and may take two to three weeks to disappear completely. For a short time, they’ll watch out for signs of hearing loss. Steroids may help minimize post-operative inflammation. Additional physical therapy may help them overcome any remaining dizziness.