Retinitis Pigmentosa - research and treatments is a English group. It is a CLOSED group. There are 3,106 participants in that group. So it is a Medium group. 299295566853564 is the identifier of this group with Facebook. We last updated on 2015-01-22 13:49:14.
I set up this support group to have a platform where we can discuss research and treatments.
You are free to share all kinds of theories, treatments, and experiences - but if we're going into discussion please behave politely. I WILL ban people with a bad attitude, since that never brings a discussion forward.
I want this group to have a scientific foundation, in discussions about 'proof and evidences' please refer to recognized sources within the frames of Western medicine.
But everyone is free to share ANY KIND of information about research, treatments och drugs.
Right now there are several clinical trials going on around the world, visit http://www.clinicaltrials.gov/
for more info
A great place to catch up on research news is Foundation Fighting Blindness
http://www.blindness.org/
and you can also follow their blog at
https://www.blindness.org/blog/
I'm also very thankful for the Gene Team and their work
http://www.thegeneteam.org.uk/
For articles and papers about research and clinical studies you can visit
PubMed at http://www.ncbi.nlm.nih.gov/pubmed
IOVS at http://www.iovs.org/
Journal of Vision at http://www.journalofvision.org/
tvst at http://tvstjournal.org/
ARVO at http://www.arvo.org/
The Lancet at www.thelancet.com/
Any information shared in this group is to be regarded as opinions, it's your responsibility to check with your doctor/ ophthalmologist/ retinal specialist/
This group is about research and treatments ONLY. For discussions about other things than research and treatments, please visit the RP support groups. I will delete unrelated posts.
Posts that clearly promote a certain product/company/research/clinic for financial gain et al will be deleted.