N/A is the main language of Prayers for LilyAna facebook group. It is a CLOSED group. Prayers for LilyAna has 366 members. So people rank it like a Small group. You can find this group by searching 349472858501539 on Google, Bing or Yahoo. Last update is on 2015-03-27 02:54:40.
Little LilyAna needs prayers!! Our Story...
On February 3rd LilyAna came down with her first cold. We took her to the emergency room that evening because her cold was getting worse. We were sent home. Diagnoses: Virus. We took her back to the emergency room early tuesday morning because of breathing complications. We were sent home at 8am Tuesday morning. Diagnoses: Croup. We went back to the ER Tuesday afternoon because of more beathing complications. They admitted LilyAna Tuesday evening. She struggled with breathing and fevers all night long. She went into distress at 5am Wednesday morning. By 12pm she had to be intubated. She was life flighted to Randall Children's Hospital at Emanuel in Portland Oregon. She arrived at 3:30pm in critical condition. He body was in shock. She was in cardiac and pulmonary failure. She had staph infection in her right lung that quickly moved into her blood stream causing sepsis (shock). She had pnemonia in both lungs. After 6 hours the icu team was able to put her on the ECMO machine. While on ECMO for 17 days she underwent countless blood transfusions, pheresis, and dialysis, and several xrays. 2 days after being on ECMO it was confirmed that she had staph infection in her right lung which ultimately leaked into her blood stream infecting her blood. While on ECMO a CT scan confirmed shrinkage and bleeding in the brain. She had a right occipital stroke. The decision was made to take her off ECMO asap. She was successfullly trialed off ECMO that day. Since then her body has been slowly recovering. She was able to stop dialysis and her kidneys are working great. Swelling in her throat from the intubation tube made it necessary to have tracheostomy placed unitl her throat heals. She has a G-tube for her nutrition until she relearns how to swallow and eat efficiently. She is finally off all her sedation drugs and is starting to smile. Just like a newborn baby she is learning to hold her head up, eat, use her muscles, make noises. She is tracking things with her eyes and sometimes focuses on objects, but were not sure how well she can see right now. Her lungs are doing great, but she does have a right diaphram paralysis, probably from the nerve being damaged during the ECMO surgery. She is making progress and recovering every day. Over time and with lots of therapy, love and prayers we know she will recover 100%.