Osteogenesis Imperfecta (OI) Foundation is a N/A group. Having alot of group type in Facebook: close, open and secret and it is a CLOSED group. They attracted 5,812 members. So it is a Large group. 43935368633 is the identifier of this group with Facebook. 2015-03-21 02:05:24 is the closest date we have information about it.
Welcome to the OI Foundation’s Facebook Forum Page. This page is a place for members of the OI community to provide mutual support to one another in an interactive setting. For updates and announcements from the OI Foundation, please visit the OI Foundation’s Official Facebook Page at http://www.facebook.com/pages/Osteogenesis-Imperfecta-Foundation/367514583303036
Osteogenesis Imperfecta (OI) is a genetic disorder causing fragile bones that break or fracture very easily. A cough can break a rib; putting on a T-shirt can break an arm. People with OI often live with respiratory difficulties, spine curvature, short stature, hearing loss and/or bone deformities. There is no cure for OI yet. It is estimated that a child with OI is born every day, and between 25,000 - 50,000 people who have OI live in the United States.
This is a forum where everyone can voice their opinions in a thoughtful and respectful way. While we encourage our members to engage in healthy discussion, we ask that everyone is mindful that this is a very large and diverse group and even the most well-meaning users should be thoughtful before posting. We follow Facebook’s Community Standards and ask that all of our users take a minute to review these policies at https://www.facebook.com/communitystandards This page is monitored (not moderated) by OIF staff, meaning, that due to the high-traffic on this page, not every post is reviewed.
The privacy setting for this group is “Closed”, meaning anyone can find the group and see who’s in it. Only members can see the posts. Please be aware that this is not a secured forum. The OI Foundation does not encourage sharing private or sensitive medical information on any social media page.
If you have an immediate concern, please email the OIF site administrators at pharvey@oif.org, ecarter@oif.org or bonelink@oif.org. You may also call the OIF office at 800-981-2663.