English is the main language of Touched by an Angel with Lissencephaly/Microcephaly facebook group. It is a CLOSED group. They attracted 928 members. So it is a Small group. You can find this group by searching 6409009273 on Google, Bing or Yahoo. We last updated on 2015-02-28 11:10:19.
This is a support/ common interest group for anyone that has been blessed by knowing or caring for an angel with Lissencephaly/Microcephaly.
If you are a parent, this is a great way to find new friends, share your journey and network with other parents who have/had a child with this diagnosis.
If you are a friend or family member, please feel free to share how your life has been touched and connect with members.
You are welcome to share any information, pictures, videos, hopes, dreams, trials etc.
We all have a common bond!!
What is Lissencephaly?
Lissencephaly, which literally means "smooth brain," is a rare, gene-linked brain malformation characterized by the absence of normal convolutions (folds) in the cerebral cortex and an abnormally small head (microcephaly). It is caused during embryonic development by defective neuronal migration, the process in which nerve cells move from their place of origin to their permanent location. Symptoms of the disorder may include unusual facial appearance, difficulty swallowing, failure to thrive, muscle spasms, seizures, and severe psychomotor retardation. Hands, fingers, or toes may be deformed. Lissencephaly may be associated with other diseases including isolated lissencephaly sequence, Miller-Dieker syndrome, and Walker-Warburg syndrome.
Microcephaly most often occurs because the brain fails to grow at a normal rate. Skull growth is determined by brain growth. Brain growth takes place while in the womb and during infancy.