Chiari and Syringomyelia Australia is a English group. Having alot of group type in Facebook: close, open and secret and it is a CLOSED group. Chiari and Syringomyelia Australia has 682 members. So it is a Small group. 120803784642160 is the identifier of this group with Facebook. We last updated on 2015-02-23 18:54:05.
*PLEASE MESSAGE ADMIN WHEN ASKING TO JOIN AND READ ALL BELOW*
Welcome - we ask that all people wishing to join please send a quick hello to our admin (Kirstin and Fiona) as there has been a few spammers.
We are a group for Australians and New Zealanders looking to raise awareness and for information specific to these countries. To make acceptance quicker please let us know what state you are in.
PLEASE remember that due to the nature of any support groups there FEELS to be more people with complications. However there is hope with chiari and even hope for a fully successful surgery. So please keep in mind we DO NOT represent the majority of stories as those who are well are off enjoying life.
Please read the group rules in the file section on entering. We keep ourselves closed so you can feel comfortable talking freely.
Due to the number of international groups we are trying to keep an Aussie/NZ feel, but if you are an international member who feel we can be of help please let us know in your hello message. We will never refuse anyone looking for help.
Please also check out our sister support group for Ehlers Danlos
https://www.facebook.com/groups/EDSZebrasAustralia/